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‘We’re in the dark’: Chinese health officials unaware of research on ‘world’s first gene-edited babies’

  • Authorities say they were not told about the controversial experiment that researchers claim to have carried out in China
  • Research to switch off HIV-related gene not independently verified

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He Jiankui claims that he and a team of researchers have helped make the world’s first genetically edited babies: twin girls whose DNA he said he altered. Photo: AP

A Chinese scientist’s claim that he has created the world’s first gene-edited children has caught health regulators flat-footed and triggered a flood of condemnation from research bodies.

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He Jiankui, from Southern University of Science and Technology in Shenzhen, said in a YouTube video posted online on Monday that healthy twin sisters were born in China this month from embryos he and a team of researchers modified to switch off an HIV-related gene.

Chinese health officials said they were unaware of the controversial experiment.

“We just saw it on internet. We are equally shocked as everybody else,” an official in charge of medical ethics evaluation at the National Health Commission said. “We are completely in the dark.”

The commission is the highest authority on health-related issues in the country and can stop any experiment deemed unsafe or unethical.

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The research is controversial because of the risk that children born using it could die from unknown side effects and the technology could be abused.

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