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Why my Chinese parents hid my cancer diagnosis from me, and how to help others like them be truthful with their children about serious illness

  • Cancer survivor Chloe Feng understands now why her parents hid the truth about her illness, and has learned how Chinese parents like them could be more open
  • Not doing so risks children losing trust in their parents, a doctor says. Hospitals in China could hire more medical social workers and invite charities to help

Reading Time:5 minutes
Why you can trust SCMP
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Chinese parents avoid telling their children upsetting news, even if it is about a medical issue that involves them, as Chloe Feng discovered 10 years ago with her cancer diagnosis. Photo: Chloe Feng

On Christmas Day in 2010, I turned 17. As I blew out my birthday candles, I wished that I could be healthy, as I was in some discomfort. Less than a month later, I was in hospital in Hebei province, in China, for a check-up after suffering severe stomach aches. The doctors sent me home. In February 2011, I was in hospital again, and in much more pain. Surgeons removed a 22cm (8.7 inch) tumour from my abdomen.

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My friends and classmates visited me in hospital and brought lovely gifts – crystal balls, prayer bracelets, paintings – and encouraging letters and flowers. It was the Spring Festival, and I was eager to return home and get back to school.

Then the lab results for the tumour came back – and everything changed. I saw my mother, in tears, run to a restroom and I could hear her suppressed sobs over a running tap. My dad seemed like he wanted to say something to me, but didn’t. Mum returned but didn’t look at me. Her eyes were red. As I lay in bed, I tried to learn what was wrong, but the only response was: “You probably cannot go back to school.”

I cried, uncontrollably. As relatives and my parents’ colleagues whispered to each other in the corridor, I heard someone ask: “Will you consider having another child?”

Feng’s friends and classmates visited her in hospital and brought gifts, letters and flowers. Photo: Chloe Feng
Feng’s friends and classmates visited her in hospital and brought gifts, letters and flowers. Photo: Chloe Feng

A voyage of discovery

They did not tell me, but my tumour was malignant and doctors were worried it could spread. What came next was six rounds of chemotherapy and a year of commuting between the hospital and my home. My hair began to fall out – I lost it all within two weeks.
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